Wonderful chat with Amy Ohm, Founder and CEO of Treatment Diaries! The social network she created is Social but PRIVATE, with complete privacy for those living with illness, newly diagnosed or caring for someone with a medical condition. …And a quick Thank You to our sponsor, TribeBoost! A great way to grow your Twitter audience with relevant and quality people. Learn More Here, and be sure to use Coupon Code “unscrambled” for 15% OFF the first month 😉
Amy is a melanoma survivor and she felt a need to create something for those who are ill – a platform for people to speak anonymously (if they wish.) As David so eloquently put it, she took chicken poop and turned it into chicken salad.
But first we had our news item: nearly everyone knows about the ALS Ice Bucket Challenge. While it is no doubt a good thing that people are donating money for ALS research it turns out the A:S foundation spends nearly half of their annual revenue on staff salaries alone, and another $1 million on lobbying Washington, DC. And they support research on stem cells which people who are anti-abortion will not be pleased with.
We went back to Amy who spoke in detail about some of the benefits of her site. One of the main benefits of Treatment Diaries is that once people who sign up and engage with other patients they learn from others. This leads to better behavior which then makes them feel better. The key with this tool is that you can be an anonymous user if you do not want to share your illness with the wider world. You can be public but you can also be private. This could allow people who otherwise would not seek help be more likely to do so. This may surprise you: Many individuals don’t feel comfortable sharing every single experience and symptom with their doctors but feel completely free to do so here.
She also said that humor plays a big role in the platform as well. Some users specifically focus on making other users laugh so that people can take their minds off their illness and so they have the illness but the illness does not have them.
After having this serious (and sometimes funny) discussion we decided to end the episode with our weekly news item: how to disconnect from someone on LinkedIn, if you so choose.
This was a very important episode and can be very useful; almost all of us know someone, or will know someone, who is sick. This tool can help them engage in the community, feel better and hopefully get better too.
After surviving a cancer diagnosis of Melanoma, Amy uncovered an unmet need in the market to keep health experiences private while looking for ways to make is social through the anonymous connections with those navigating a similar experience. Amy was inspired to create Treatment Diaries – an online patient community built at the intersection of personal health, privacy, and social communication. Individual patients, caregivers and health advocates from around the world connect on Treatment Diaries to share their journey and bring personal insight to resources, treatment options and outcomes. The platform now serves as a way to bring personalized adherence, compliance and disease awareness materials to patients in a way that brings each individual closer to the center of their care. Treatment Diaries believes sharing health experiences can help lead to improved adherence and better health.
Amy is committed to the mission of making the Treatment Diaries experience lasting for those in need of support – where they can make authentic, quality, lifelong, and if they wish anonymous connections, and inspire others to live life to the fullest, no matter what their condition.
Amy currently resides in TX with her husband and teenage daughter and is a proud mother to a US Soldier. Amy has a background in software, marketing and is a graduate of California Polytechnic University, Pomona along with a passion for helping those in need of real information, from actual patients and caregivers at a difficult time.
Thanks again, Amy!
*and THANKS to all our listeners for tweeting along LIVE with hashtag #unscrambled!